Sharing Research and Stories on the Extra Cost of Living with a Disability

The Disability Squeeze

About

What is the Disability Squeeze?

It cost more to live with a disability.

The “disability squeeze” is the financial pressure that people with disabilities experience trying to afford what they need for their disability. 

Please explore our research and share your experiences on this website we we can make a difference together in motivating more inclusive disability policies. 

research

Research on the extra costs of living with a disability in the US and other countries

project team

This research and storytelling project is led by Dr. Zach Morris, PhD, an Associate Professor at the Stony Brook School of Social Welfare. The project includes collaborations with numerous academic and policy professionals. Partners include:

Michelle Ballan

Stony Brook University

Daniel Mont

Center for Inclusive Policy

Sarah Bagugh

American Foundation for the Blind

Stephanie Rennane

Rand Corporation

Amber Davis

Johns Hopkins University

Arielle Silverman

American Foundation for the Blind

Nanette Goodman

Syracuse University

Philip So

American Foundation for the Blind

Stephen McGarity

University of Tennessee

Ghenet Weldeslassie

Stony Brook University

In Memoriam
DR. BROOKE ELLISON

We mourn the loss of Dr. Brooke Ellison, Associate Professor at Stony Brook University and Chair of the Expert Advisory Panel. Dr. Ellison’s research focused on health policy and medical ethics, particularly their intersection with disability. Paralyzed from the neck down after a spinal cord injury nearly 30 years ago, she dedicated her career to qualitative research, exploring lived experiences to drive societal transformation. Her work included studies on human trafficking survivors, technology and disability, and medical education. Dr. Ellison held degrees from Harvard Kennedy School (BA, MA) and a PhD in Sociology from Stony Brook University. We dedicate our research to Dr. Ellison who knew firsthand the deleterious impact of the disability squeeze. I am text block. Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit.