Two visually impaired people sit at a table cluttered with art supplies, both wearing glasses. On the left, the South Asian person with facial hair uses watercolor to paint flowers. A reference book and a pair of reading glasses rests behind them. Across the table, the Black person with short hair examines a small figurine through a magnifying glass that's centered on an eye. The craft area is warmly lit by two desk lamps and the illustration background is a yellow green.
Source: https://affecttheverb.com/disabledandhere/

A place to share pertinent research on the extra costs of living with disabilities and the disability financial squeeze.

“And so, I find myself spending… whether if it was to pay for conveniences of transportation to get me there on time, whether it was to buy a piece of technology that was going to help me do that job so I could fit in, buy a pair of really good headphones [so] that I did not stick out because I do not want no one hearing me read my email or dictate”

-Anonymous person with blindness or low-vision cited in Savin and colleagues (2024)

Here is a running list of relevant research studies:

Chong N, Akobirshoev I, Caldwell J, Kaye HS, Mitra M. The relationship between unmet need for home and community-based services and health and community living outcomes. Disabil Health J. 2022;15(2):101222.

Gupta S, McColl MA, Guilcher SJT, Smith K. An adapted model of cost-related nonadherence to medications among people With disabilities. J Disabil Policy Stud. 2020;31(1):35-45.

Mitra, S., Palmer, M., Kim, H., Mont, D., & Groce, N. (2017). Extra costs of living with a disability: A review and agenda for research. Disability and health journal, 10(4), 475-484.

Mont, D. (2023). Estimating the extra disability expenditures for the design of inclusive social protection policies. Frontiers in Rehabilitation Sciences, 4, 1179213.

Morris, Z. A., McGarity, S. V., Goodman, N., & Zaidi, A. (2022). The extra costs associated with living with a disability in the United States. Journal of Disability Policy Studies, 33(3), 158-167.

Morris ZA, Zaidi A. Estimating the extra costs of disability in European countries: Implications for poverty measurement and disability-related decommodification. J Eur Soc Policy. 2020;30(3):339-354.

Pynoos J, Nishita CM. The cost and financing of home modifications in the United States. J Disabil Policy Stud. 2003;14(2):68-73. doi:10.1177/10442073030140020201

Savin, K., Morris, Z. A., Wise, M. S., & Marinoff, R. (2024). “Every day you are working you have to prove it”: Navigating the costs of work and ableism with visual impairment. Journal of vocational rehabilitation, 60(3), 389-401.

Zaidi A, Burchardt T. Comparing Incomes when Needs Differ: Equivalization for the Extra Costs of Disability in the U.K. Rev Income Wealth. 2005;51(1):89-114.